Big Hearts Walk for St. Mary’s Kids

On Sunday, April 23, 2017, the Caterina Grace Foundation attended the Big Hearts for St Mary’s Walk at Crocheron Park in Bayside Queens NY.  100 close family and friends joined us as we walked 2 miles in honor of our sweet Caterina as well as all the children battling rare and serious illnesses and being…read more

Presentation of $27,000 to Cohen Children’s Medical Center

        On August 13th, 2017, the Caterina Grace Foundation presented a $27,000 check to Northwell Health Cohen Children’s Medical Center.  $20,000 would be distributed to the Genetics Program led by Dr. Kenan O’Nell and $7,000 to the Chaplaincy Program.  While Caterina was alive, Mom and Dad worked with Dr. Hyman and Dr. Bialer within the Genetics…read more

Presentation of Caterina Grace Ziniti Day Proclamation

Presented by Legislator William R. Spencer of the Eighteenth District On October 3rd at 4:00 p.m. in Hauppauge, Long Island, Legislator William R. Spencer of the Eighteenth District presented to  our family with a Proclamation naming Caterina’s birthday, November 15, 2017 as Caterina Grace Ziniti Day in Suffolk County to raise awareness for Nemaline Myopathy…read more

St. Mary’s Children’s Hospital Tribute Dinner

On November 6th 2017, we were invited to the Annual St. Mary’s Children’s Hospital Tribute Dinner at Guastavino’s in New York City.  We were asked to be the St. Mary’s key note speakers for the evening. Although incredibly difficult, we were honored to share our daughter’s story, speak about the loving care provided to them…read more

1st Annual Caterina Grace Walk for Life

Our 1st Annual Caterina Grace Walk for Life Event took place on November 18th at Belmont Lake State Park which featured a 2-mile walk around the lake. We also provided some light refreshments as well as some fun bounce house activities for the kids who participated. This event hosted over 300 walkers and helped to…read more

NBC Interview

Please see our NBC video interview where Anthony and I were interviewed by NBC and we discussed our experience with St. Mary’s Children’s Hospital and their music therapist, Melissa Sandoval. We were asked as part of a brand-new program if they could record Caterina’s heartbeat and play a song along with the heartbeat. It was…read more

She is here! Alessandra Grace Ziniti.

In addition to working on the foundation, we had also been working on something else tremendously special to us. In August 2017, we became pregnant with our precious Ale. Every day was a struggle for 9 months to get through this pregnancy, and even now that she is here we look back and wonder how…read more

Visit to Boston Children’s Hospital – Dr. Alan Beggs

Two months after the birth of our third child, we decided to take a trip to Boston to visit the research lab and the team responsible for conducting studies on rare congenital myopathies.  A close friend of ours at Quinnipiac University was getting married in Boston and we felt it would be the perfect opportunity…read more